Long Covid treatment can lead to debt after insurance denies claims

In June 2021, 32-year-old Alyssa Maness was diagnosed with POTS, a nervous system disorder that her doctors believe was triggered by Covid.

POTS, or postural orthostatic tachycardia syndrome, caused numbness throughout her arms and legs, a pins-and-needles sensation and sudden drops in her heart rate.

Because her heart problems didn’t go away, in early 2022 her doctors began conducting a series of lab tests in an attempt to better understand her long Covid symptoms.

Long Covid treatment can lead to debt after insurance denies claims

When Maness submitted the testing to her insurance — Anthem Blue Cross — the provider deemed the testing medically unnecessary and declined to cover the cost. She’s now on the hook for the medical bills, which have already cost her more than $10,000 out of pocket.

“I’m kind of at the point sadly where I’ve just given up,” said Maness, a Ph.D. student in Sacramento, California. Many of her insurance appeals have been denied. “I don’t have the mental bandwidth to even battle this anymore, because it’s become clear that it is most likely going to be unsuccessful.”

Maness is among several long Covid patients in the United States interviewed by NBC News who say their insurance providers are declining to provide coverage related to their illness.

Alyssa Maness.
Alyssa Maness.Courtesy Alyssa Maness

But there are likely many more. Up to 4 million full-time workers are out of the labor force due to long Covid, according to research from the Brookings Institution, a Washington-based think tank.

NBC News has asked insurance providers for comment.

For some, the care they need to manage their chronic illness has left them in medical debt, which can easily balloon into the thousands or even tens of thousands of dollars, experts say. It’s unclear how many are being denied coverage, but a paper published in May in JAMA Health Forum estimated that the individual medical costs of long Covid could come to roughly $9,000 a year.

Part of the problem, experts say, is the ambiguity of long Covid symptoms, which can range from extreme fatigue to loss of taste and smell to debilitating heart palpitations. There’s no official test to diagnose the condition, nor is there any specific recommended treatment. That makes it more difficult for doctors to come up with a proper treatment.

Before they pay, insurance companies often want to know if the treatment is proven to work.

Long Covid patients can fight the denied claims through appeals or going to court — a time-consuming and draining approach for any patient, let alone those who may suffer from fatigue and brain fog, said Michele Johnson, the executive director of the Tennessee Justice Center, a legal aid group that has helped long Covid patients get health coverage.

“They’re trying to keep their job or keep caring for their family,” she said, “and there’s so much bureaucracy and red tape that they’re just drowning in it.”

‘Medical necessity’

Experts say insurance companies will often deny claims for care related to long Covid because they don’t see it as a “medical necessity.”

The term is what insurance companies use to assess whether they should approve or deny a claim, said Linda Bergthold, a former health policy researcher at Stanford University’s Center for Health Policy.

The term has been thrown around by insurance companies for decades, but it wasn’t given a formal framework until the late 1990s, which Bergthold helped develop.

In order for the care a patient receives to be deemed medically necessary by an insurance provider, there has to be substantial research or evidence that shows that it works, she said.

That’s “a key issue for long Covid,” she said, because the illness is so new and still poorly understood.

“Research, just like everything with Covid, is all new,” she said. “Nobody really quite knows what works and nobody really understands why some people have it longer than others.”

To be sure, as of 2021, there are diagnostic codes for long Covid — key tools used by doctors to characterize medical diagnoses for insurance coverage, said Dr. Alan Kwan, a cardiologist at Cedars-Sinai Medical Center in Los Angeles. Those codes, however, don’t always cover the myriad health problems linked to long Covid, he said.

POTS, for example, does not have a standardized diagnostic code and has only recently been linked to Covid.

Doctors may work hard to get a patient a formal diagnosis for long Covid to help with insurance, though there isn’t an official test for long Covid and the testing that is done may not be covered by insurance.

Some patients may eventually get coverage after submitting an appeal to their insurance, but usually not before shelling out hundreds of dollars, Kwan said.

Others may not be so lucky and may be forced to pay for most of their care out of pocket.

That’s what happened to Amy Cook, 51, of Orange County, California.

Amy Cook.
Amy Cook.Courtesy Amy Cook

In May, she got Covid, which caused her multiple long-term health problems including chest congestion, erratic heart rate, headaches and visual impairment.

Cook, who works a full-time job as a chief operating officer for a consulting agency, said she was bedbound for four months because of her long Covid symptoms.

Around October, her doctor recommended that she try naltrexone, a drug used for opioid addiction that has shown promise in lifting long Covid symptoms, as well as hyperbaric oxygen. Both therapies are being tested in clinical trials as potential treatments for the condition, though neither is approved by the Food and Drug Administration for the illness.

Aetna, her insurance provider, declined to cover most of the cost of the treatments.

“I’m at $28,000 to date and I have more treatments coming up,” Cook said of her out-of-pocket expenses.

Cook said she’s currently in a financial position to be able to self-fund the treatments, although she still hasn’t recovered from her illness and the expenses could easily grow.

“I don’t know when I’ll be able to stop,” she said.

In a statement, Alex Kepnes, a spokesperson for Aetna, said there is no single definition for long Covid and that coverage decisions “are based on medical necessity and evidence-based guidelines.”

“We are focused and committed to providing our members with access to care and treatments for medically necessary services to help them address their conditions and improve their health,” he said.

What can be done?

Johnson, of the Tennessee Justice Center, said a patient can improve their chances of insurance approving their claim by making sure they have a plan before they even enter the doctor’s office.

Her guidance:

  • Ask how much the care will cost.
  • Ask the doctor to explain clearly on insurance paperwork exactly why the care was needed.

Working with a doctor can be “very effective,” Johnson said, as they are usually trained to know what meets insurance providers’ standards for coverage.

If that doesn’t work, and insurance denies the patient’s claim, the patient can appeal the decision, she said. Under the Affordable Care Act, all health insurance must have an external appeal process that allows a patient to challenge the provider’s verdict.

“The idea that you could deny services without an opportunity for appeal is no longer true,” she said.

If still unsuccessful at this point, patients may begin to panic, Johnson said, because the outstanding bill can be taken to collections and patients can take a hit on their credit score. Providers often provide a very short time window for payment, and appeals often take months.

Maness, of California, said she’s panicked at least once when her insurance provider took too long to get back to her on an appeal and ended up shelling out hundreds of dollars toward her bill.

What a patient does after that will depend on their health insurance, Johnson said.

People with Medicaid, for example, can take the claim to court if they feel the denial was unjustified. For people on private insurance, it’s less clear what they can do, but one option is to contact the state’s Department of Commerce and Insurance, which regulates insurance companies.

Johnson suggested patients frame their complaint saying, “You’ve licensed this insurance to do this in our state and they’re denying essential benefits consistently.”

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Patient advocates push for aggressive crackdown on medical debt : Shots

Patient advocates push for aggressive crackdown on medical debt : Shots

Marcus and Allyson Ward were shelling out off a debt courting back again to the birth of their twins, Theo and Milo. They are between 100 million Americans with professional medical financial debt, in accordance to a KHN/NPR investigation.

Taylor Glascock for KHN and NPR


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Taylor Glascock for KHN and NPR


Marcus and Allyson Ward had been shelling out off a personal debt dating back again to the beginning of their twins, Theo and Milo. They are between 100 million Us citizens with healthcare debt, according to a KHN/NPR investigation.

Taylor Glascock for KHN and NPR

Dozens of advocates for sufferers and consumers, citing popular hurt brought on by health-related financial debt, are pushing the Biden administration to choose a lot more intense steps to defend Us citizens from health care charges and credit card debt collectors.

In letters to the IRS and the Consumer Fiscal Security Bureau, the teams simply call for new federal rules that amid other factors would prohibit debt for medically essential care from appearing on client credit rating reviews.

Advocates also want the federal governing administration to bar nonprofit hospitals from selling affected individual credit card debt or denying health-related treatment to people today with previous-due expenses, techniques that continue to be popular across the U.S., KHN observed.

And the teams are pressing the IRS to crack down on nonprofit medical center techniques that withhold fiscal guidance from minimal-profits clients or make help cumbersome to get, yet another frequent obstacle KHN documented.

“Each and every working day persons are obtaining to make decisions about housing and apparel and food items mainly because of professional medical credit card debt,” says Emily Stewart, govt director of Local community Catalyst, a Boston nonprofit foremost the energy. “It is seriously urgent the Biden administration acquire motion to place protections in area.”

Amid the extra than 50 teams supporting the initiative are national advocates such as the National Buyer Law Middle, the Arthritis Foundation, and the Leukemia & Lymphoma Modern society.

Nationwide, 100 million men and women have wellness treatment personal debt, in accordance to a KHN-NPR investigation, which has documented a disaster that is driving Americans from their homes, draining their financial savings, and avoiding thousands and thousands from accessing care they need to have.

Although some of the debt appears on credit studies, a great deal of it is hidden elsewhere as credit card balances, loans from family, or payment designs to hospitals and other health care providers.

The scale of this issue and its toll have spurred numerous countrywide and state initiatives.

Last spring, the White Residence directed federal organizations to operate on relieving professional medical debts for veterans and to stop thinking of professional medical credit card debt in analyzing eligibility for some federally backed mortgages.

California, Colorado, Maryland, New York, and other states have enacted new regulations to develop client protections and demand hospitals inside of their borders to increase economic aid. And the 3 premier credit history agencies — Equifax, Experian, and Transunion — reported they would halt which include some health-related financial debt on credit experiences as of last July.

But a lot of consumer and individual advocates say the steps, though essential, continue to leave thousands and thousands of People vulnerable to economical ruin if they turn out to be ill or hurt. “It is significant that the CFPB consider added motion,” the teams compose to the federal agency established in 2010 to bolster oversight of consumer financial goods.

The key credit history ranking providers, for illustration, agreed to exclude only debts that have been paid off and unpaid debts of a lot less than $500. Sufferers with greater health-related expenditures they can not pay back may well nonetheless see their credit rating scores drop.

The groups also are asking the CFPB to eradicate deferred fascination on health-related credit history cards. This arrangement is popular for sellers this sort of as CareCredit, whose financial loans have no interest at first but can exceed 25{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} if clients don’t spend off the bank loan in time.

Assortment sector officers have lobbied against broader restrictions on credit reporting, saying limitations would acquire absent an crucial resource that hospitals, physicians’ workplaces, and other health-related suppliers want to obtain their funds and stay in enterprise.

“We recognize the worries, but a wide ban on credit score reporting could have some unintended penalties,” reported Jack Brown III, president of Florida-dependent Gulf Coastline Collection Bureau, citing the prospect of battling hospitals and other companies closing, which would lessen treatment selections.

Brown, a previous president of ACA Worldwide, the selection industry’s major trade affiliation, warned that much more healthcare suppliers would also start off demanding upfront payment, putting more tension on individuals.

To even more protect clients from out-of-pocket charges like these, lots of advocates say hospitals, especially all those that are exempt from taxes since they are meant to serve the community, must make money aid more available, a key need in the group’s letters. “For much too prolonged, nonprofit hospitals have not been behaving like nonprofits,” reported Liz Coyle, executive director of the nonprofit Georgia Look at.

Charity treatment is available at most U.S. hospitals. And nonprofit medical devices must provide assist as a problem of getting tax-exempt. But at several professional medical centers, info about this guidance is challenging or unattainable to come across.

Benchmarks also fluctuate commonly, with help at some hospitals minimal to individuals with cash flow as lower as $13,590 a calendar year. At other hospitals, individuals building five or 6 periods that substantially can get aid.

The end result is prevalent confusion that has remaining countless people who should really have been eligible for assist with huge expenses instead. A 2019 KHN analysis of healthcare facility tax filings found that virtually half of nonprofit health-related methods had been billing people with incomes lower adequate to qualify for charity care.

The groups are inquiring the IRS to situation principles that would established popular specifications for charity care and a uniform application throughout nonprofit hospitals. (Current rules for charity treatment do not use to for-revenue or general public hospitals.)

The advocates also want the federal company to reinforce limits on how considerably nonprofit hospitals can cost and to curtail aggressive collection techniques this kind of as foreclosing on patients’ homes or denying or deferring professional medical treatment.

Far more than two-thirds of hospitals sue sufferers or acquire other lawful action from them, such as garnishing wages or putting liens on property, in accordance to a recent KHN investigation. A quarter promote patients’ money owed to credit card debt collectors, who in convert can go after sufferers for many years for unpaid bills. About 1 in 5 deny nonemergency treatment to individuals with remarkable financial debt.

“Charitable institutions, which have other procedures of assortment accessible to them, should not be permitted to withhold desired clinical care as a signifies to strain patients to pay back,” the groups wrote.

KHN (Kaiser Overall health News) is a countrywide, editorially impartial application of KFF (Kaiser Spouse and children Basis).

To prevent medical debt, the U.S. could learn from Germany’s health care system : Shots

To prevent medical debt, the U.S. could learn from Germany’s health care system : Shots

Dr. Eckart Rolshoven examines a patient at his clinic in Püttlingen, a small town in Germany’s Saarland region. Although Germany has a largely private health care system, patients pay nothing out-of-pocket when they come to see him.

Pasquale D’Angiolillo for KHN


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Pasquale D’Angiolillo for KHN


Dr. Eckart Rolshoven examines a patient at his clinic in Püttlingen, a small town in Germany’s Saarland region. Although Germany has a largely private health care system, patients pay nothing out-of-pocket when they come to see him.

Pasquale D’Angiolillo for KHN

PÜTTLINGEN, Germany — Almost every day, Dr. Eckart Rolshoven sees the long shadow of coal mining in his clinic near the big brownstone church that dominates this small town in Germany’s Saarland.

The region’s last-operating coal shaft, just a few miles away, closed a decade ago, ending centuries of mining in the Saarland, a mostly rural state tucked between the Rhine River and the French border. But the mines left a difficult legacy, as they have in coal regions in the United States, including West Virginia.

Many of Rolshoven’s patients battle lung diseases and chronic pain from years of work underground. “We had an industry with a lot of illnesses,” said Rolshoven, a genial primary care physician who at 71 is nearing the end of a long career.

The Saarland’s residents are sicker than elsewhere in Germany. And like West Virginia, the region faces economic hurdles. For decades, German politicians, business leaders and unions have labored to adjust to the mining industry’s slow demise.

But this is a healthier place than West Virginia in many respects. The region’s residents are less likely to die prematurely, data shows. And on average, they live four years longer than West Virginians.

There is another important difference between this former coal territory and its Appalachian counterpart: West Virginia’s economic struggles have been compounded by medical debt, a burden that affects about 100 million people in the U.S. — in no state more than West Virginia.

In the Saarland, medical debt is practically nonexistent. It’s so rare in Germany that the federal government’s statistical office doesn’t even track it.

The reason isn’t government health care. Germany, like the U.S., has a largely private health care system that relies on private doctors and private insurers. Like Americans, many Germans enroll in a health plan through work, splitting the cost with their employer.

But Germany has long done something the U.S. does not: It strictly limits how much patients have to pay out of their own pockets for a trip to the doctor, the hospital or the pharmacy.

Rolshoven’s patients pay nothing when they see him. That not only bolsters their health, he said. It helps maintain what Rolshoven called social peace. “It’s really important not to have to worry about these problems,” he said.

German health officials, business leaders and economists say the access to affordable health care has also helped the Saarland get back on its feet economically, bolstered by the assurance that workers could get to the doctor.

“Without this, the Saarland would be dead,” said Beatrice Zeiger, managing director of the Arbeitskammer des Saarlandes, a regional labor group. “It’s unthinkable.”

While health costs rise in the U.S., Germany contains them

In West Virginia, whose wooded valleys and decaying industrial plants could be mistaken for the Saarland’s, access to health coverage has been important as the state weathered the decline of its mines.

A decade ago, state leaders moved to expand the Medicaid insurance program through the Affordable Care Act. And as of last year, just 6{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of state residents were uninsured, less than half the rate before the 2010 law.

But growing numbers of West Virginians without government insurance are in private health plans with deductibles that require they pay thousands of dollars out of their own pockets before coverage kicks in.

The typical individual health plan an American gets through work now comes with a more than $1,500 deductible, a particularly big sum in a state like West Virginia where residents often earn less than residents of other states.

That, in turn, is driving medical debt. A quarter of West Virginians with a credit report have medical bills in collections, almost twice the national rate, according to data compiled by the nonprofit Urban Institute. In several counties in the state, the rate is about a third.

And those figures likely understate the problem. Many more people put medical bills on their credit cards, borrow from family or enroll in installment plans with a hospital or other providers to pay off their bills.

“It’s a huge problem here,” said Jessica Ice, executive director of West Virginians for Affordable Health Care. “Folks with medical debt aren’t able to apply for loans to start a business or buy a starter home for their family. It’s really preventing people from climbing up the economic ladder.”

In German health plans, known as sickness funds, there aren’t typically deductibles.

Physician visits are almost always free for patients. Copays for most prescription drugs are capped at 10 euros or less, about $10. And people admitted to the hospital pay only 10 euros a day.

“Access to medical care with minimal costs for patients has been essential,” said Armin Beck, regional director of the Knappschaft Bahn See, of KBS, a health insurance plan whose roots stretch back to the 13th century, when miners set up a mutual aid society to protect one another in case of injuries or accidents. “This has been a foundation of our community,” Beck said.

‘So glad we don’t have to worry’

Along the Saar River in Germany, rusting steelworks and shuttered coal-fired power plants bear testament to the region’s economic struggles. Many towns like Püttlingen carry on in the shadow of hulking mounds of debris — Berghalde, as they are called — the detritus left behind as coal was separated from the rocky earth hauled up from underground.

The now-shuttered Bergwerk Saar coal mine in Germany’s Saarland closed in 2012, ending centuries of mining in the region. Coal from the Saarland helped fuel Germany’s industrialization and once employed tens of thousands of workers.

Pasquale D’Angiolillo for KHN


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Pasquale D’Angiolillo for KHN


The now-shuttered Bergwerk Saar coal mine in Germany’s Saarland closed in 2012, ending centuries of mining in the region. Coal from the Saarland helped fuel Germany’s industrialization and once employed tens of thousands of workers.

Pasquale D’Angiolillo for KHN

Today, new challenges confront the region. Ford, which has operated a car factory here for decades, plans to shutter the plant in a few years and move production to Spain.

But at Rolshoven’s clinic — a small set of offices tucked into a residential neighborhood — few patients can conceive of the burdens that medical bills put on Americans.

Andrea Fecht, 63, who has diabetes and came to see Rolshoven because recent tests revealed a concerning rise in her blood sugar, estimated she pays 120 euros a year, or about $125, to fill all six of her prescriptions, including her daily insulin.

In the U.S., the average price for insulin alone is nine times that in Germany, according to a recent report from Rand Corp., a research group.

Andreas Mang, a former miner who left the industry 20 years ago after a series of accidents, would likely pay even more out-of-pocket for his family’s drugs. Mang’s wife recently underwent a course of chemotherapy that would cost thousands of dollars if not for Germany’s limits on medical bills, Rolshoven said.

“I can’t imagine what it would be like not to have this support,” Mang said.

Christine Wagner said she’s had a glimpse of what Americans face. Wagner’s 18-year-old son, Jonas, has Down syndrome and has required more than 20 surgeries.

In global Facebook groups with other parents who have children with disabilities, Wagner said she’s amazed to see how much fundraising American parents do to pay family medical bills. “I’m so glad we don’t have to worry about that,” she said. “We have enough to do looking after Jonas.”

Countries where health care is actually affordable

International surveys underscore the difference Wagner observed between her experiences and those of American families.

In one recent study of health care in 11 high-income countries, the nonprofit Commonwealth Fund found that 44{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of Americans had out-of-pocket medical expenses that topped $1,000 in the previous year. Just 16{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of Germans reported paying that much. The rates were even lower in France, at 10{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f}, and Great Britain, where only 7{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} reported similar medical expenses.

U.S. patients were also more than twice as likely as patients in any of the 10 other countries studied to say they had serious problems paying medical bills.

“Many Americans may not understand how affordable health care is for patients in other countries,” said Reginald D. Williams II, who oversees international research at the Commonwealth Fund. “Medical debt is a largely U.S. phenomenon. It just doesn’t happen in other countries.”

Most wealthy countries in Western Europe, East Asia and elsewhere limit patients’ out-of-pocket costs.

In the Netherlands, where patients enroll in private health plans as they do in Germany, insurers typically cover all medical expenses after patients pay a standard deductible of 385 euros, or about $400. Physician visits are fully covered.

In Great Britain, where medical care that is “free at the point of service” has been a foundation of that country’s government-run National Health Service for almost 75 years, there are rarely any doctor or hospital bills.

When the government asked Britons who’d gone into debt about the causes, just 2{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} cited paying for medical treatment. A similar share attributed their debt to gambling or another habit.

In the U.S., 41{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of adults currently have debt from medical or dental bills, according to a KFF poll.

How Germany regulates hospital, doctor and drug prices

Germany’s strict limits on medical bills have periodically stoked concerns about patients overusing the health system.

But when health plans tried implementing a copay of 10 euros for physician visits, it was quickly rolled back amid criticism from patients and frustration among doctors, who didn’t like chasing after their patients for bills.

Germany’s limits on how much patients pay out-of-pocket at the doctor’s office have been critical to ensuring people get needed care, especially in a mining region where many battle lung diseases and chronic pain, says Dr. Eckart Rolshoven. “We had an industry with a lot of illnesses,” he says.

Pasquale D’Angiolillo for KHN


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Pasquale D’Angiolillo for KHN


Germany’s limits on how much patients pay out-of-pocket at the doctor’s office have been critical to ensuring people get needed care, especially in a mining region where many battle lung diseases and chronic pain, says Dr. Eckart Rolshoven. “We had an industry with a lot of illnesses,” he says.

Pasquale D’Angiolillo for KHN

At the hospital in Püttlingen, which is operated by the Knappschaft, Dr. Marion Bolte said asking patients to pay more isn’t worth the risk, even if it might bring in more money.

“It’s better to have 20 unnecessary visits than to have one patient get harmed because they didn’t come to the hospital because they were worried about how much it would cost,” said Bolte, the chief medical officer. “We don’t want patients to worry about money. We want them to worry about getting better.”

Nationally, German patients are less likely than Americans to die from conditions that can be treated with good access to medical care, such as heart attacks, diabetes, pneumonia and some cancers, according to regional data compiled by the Paris-based Organization for Economic Cooperation and Development.

Germans are also less likely than Americans to say they had to wait to see a doctor, surveys show.

Lower-cost health care that protects workers from going into debt has meant fewer concerns for the Saarland’s policymakers, as well. “All that our predecessors had to worry about was creating jobs,” said Oliver Groll, a senior official at IHK Saarland, the regional chamber of commerce. “Health care took care of itself.”

As mining jobs disappeared, the Saarland shifted toward other industries, such as auto manufacturing, which has been a major employer since Ford opened its factory in 1970, sparking the development of a robust auto parts sector. The chamber and other business leaders are now working to lure technology and pharmaceutical jobs to the region.

For Mang, the former miner whose wife had cancer, knowing that medical bills wouldn’t drive him into debt helped give him the peace of mind to switch careers. “I never had to think about how much health care would cost me,” said Mang, who is now a nurse.

Maintaining this system has required that Germany do something else that U.S. policymakers have historically eschewed. Germany, like most wealthy nations, regulates the prices that hospitals, doctors and drugmakers can charge. This regulation occurs through a highly structured system in which insurers negotiate collectively with physician and hospital groups to set prices.

American hospitals and other medical providers for decades have fiercely resisted limits on their prices, spending millions to fight government regulation.

Price regulation can put more financial pressure on providers, who, unlike their American counterparts, can’t just demand higher prices from insurers to bolster their bottom lines.

Mario Schüller, the hospital administrator who runs the Knappschaft hospital in Püttlingen, said hospitals must instead compete to attract patients with better care and better customer service. Those that can’t compete may close, he said.

But Schüller said he wouldn’t want to charge patients more, even if he could.

“If I had to bill patients and then try to collect from them, I’d have to pay for all that,” he said. “We’d need new staff, who would have to get paid. And if we used collections companies, they’d have to be paid, too. It becomes a devil’s bargain.”

KHN (Kaiser Health News) is a national newsroom that produces in-depth journalism about health issues. Together with Policy Analysis and Polling, KHN is one of the three major operating programs at KFF (Kaiser Family Foundation). KFF is an endowed nonprofit organization providing information on health issues to the nation.

The Healthcare Freedom Act is a vital solution to runaway medical debt

As the pandemic lingers, contributing to rising inflation and looming economic recession, Americans from all walks of life may be concerned about their medical bills. 

The Healthcare Freedom Act, proposed by Rep. Chip Roy (R-Texas), seeks to help Americans regain control of their healthcare expenses by creating “health freedom accounts” similar to existing health savings accounts. Health savings accounts enable patients to save pretax dollars for future medical expenses, but are limited to only those with high-deductible health plans, and contain numerous restrictions on what types of healthcare spending may qualify. Roy’s bill would allow any American, regardless of their health insurance type, to become eligible for health freedom accounts, as well as expand the list of qualified medical expenses. 

As a physician, I call upon Congress to pass this legislation in order to provide patients greater autonomy over their healthcare. 

Health savings accounts were first established in 2003 as part of the Medicare Prescription Drug Improvement and Modernization Act and became more prevalent as more employers began offering high-deductible health plans over the past 20 years. Many patients with high deductible plans never meet their annual deductible, and thus are forced to rely on money from their health savings account to cover routine health expenses; for these individuals, any money spent on insurance premiums by themselves or their employer is wasted. To make matters worse, current regulations also prohibit the use of health savings accounts to pay for insurance premiums. These policies serve only to enrich insurance companies at the expense of patients and private employers.  


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The Healthcare Freedom Act is a vital solution to runaway medical debt

Currently, HSAs allow maximum family contributions of up to $7,300 per year to a tax-deductible account, which enables the contributions to be untaxed for that year. In addition, the money grows tax-free and may be withdrawn from the account untaxed. These tax-protective mechanisms are how HSAs came to be known by the coveted descriptor “triple tax-free.” In addition to allowing all Americans to obtain an HSA/HFA, the Healthcare Freedom Act would nearly double the yearly contribution limit to $12,000, and allow individuals 55 years or older to contribute an additional $5,000. These changes are necessary due to the rapid growth in healthcare costs which routinely outpaces the already-astronomical rate of inflation.  

The Healthcare Freedom Act would also expand the list of approved medical expenses to include insurance premiums, direct primary care physician subscriptions, and payment to Healthcare Sharing Ministries. The bill would enable money from HSAs to be spent on all of these, plus additional services that may not be covered by health insurance. For example, patients coming to dermatology clinics may use money from their HSA/HFA to pay for the removal of benign skin lesions or other procedures deemed as “cosmetic” by insurance companies.  From the physician side, it allows a wider range of practice possibilities that would enable doctors to practice more personalized medicine.  

If HFAs become commonplace, more patients will be able to obtain their medications through compounding and specialty pharmacies, cutting out middlemen and reducing costs. Indeed, physicians will be able to circumvent insurance headaches such as step therapy (requiring patients to fail certain categories of medications before insurance will cover alternative therapies) if patients can pay for their medications directly. As a dermatologist, I frequently use direct-to-consumer pharmacies to help patients obtain customized therapies for their skin. 

Healthcare freedom accounts would expand access to these services to patient populations who may not have the financial ability to pay for these treatments out-of-pocket. Employers may also like the added flexibility of HFA’s, as they would be able to offer the new health savings account as an employee benefit without being forced to subscribe to a group high-deductible health plan. 

The net effect of expanding the number of approved expenses would be increased patient and physician autonomy. From the patient side, the Healthcare Freedom Act allows them to spend their hard-earned savings in a way that most aligns with their values. 

As a physician, I look forward to serving patients based on the ideals of the Hippocratic Oath rather than following arbitrary guidelines created by insurance companies.  

Aamir Hussain is a resident physician practicing in Washington, DC. Rufus Sweeney, a medical student at the University of Wisconsin, assisted in the creation of this story.