Medical terms used by doctors often baffling to patients

The words some doctors use are often misunderstood by patients and their families, leaving them feeling confused and vulnerable, according to researchers.

In a study published Wednesday in the journal JAMA Network Open, University of Minnesota researchers found that the language doctors often use tends not to translate easily into everyday English.

A positive test result, for example, generally suggests something negative: A disease like Covid, for example, has been detected.

The disconnect in terms has long bothered Dr. Michael Pitt, associate residency program director in the department of pediatrics at the University of Minnesota. He teaches medical students how to communicate effectively with their patients and their families.

“You could be the smartest doctor in the world, yet you’re useless if your patients don’t understand what you are saying,” Pitt said. “It’s always driven me nuts.”

Pitt and his research team tested how well people understood medical jargon by going to one of the largest gatherings in Middle America: the 2021 Minnesota State Fair.

They surveyed 215 fairgoers on their knowledge of potentially confusing health terms. None of the participants had medical training, but all spoke and read English.

While nearly all, 96{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f}, of the respondents understood that a negative result on a cancer screening was actually a good thing, the medical meaning of other common words and phrases was often misinterpreted.

An ‘impressive’ chest X-ray

Take the word “impressive.” To most of us, getting straight-A’s in school, making a half-court shot in basketball or running a marathon are all “impressive” accomplishments.

But when doctors say a patient’s chest X-ray is “impressive,” they really mean, “This worries me.”

That translation was lost on 79{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of survey respondents.

The word “impressive” is a particular pet peeve for Dr. Giridhar Mallya, a former family physician and current senior policy director for the Robert Wood Johnson Foundation.

“It borders on disrespectful because we’re describing something as impressive that is causing real harm for patients,” Mallya said.

What’s more, 21{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of survey respondents did not understand that the phrase, “Your tumor is progressing,” meant that cancer was getting worse.

“If our patients don’t understand what we think is going on, what our treatment plan is, what we’re asking them to do to get cured, better, healthy,” Pitt said, “we actually could be causing physical harm.”

“They might be less inclined to actually follow up on the actual steps necessary, which could delay care,” he said.

“It is so clearly obvious why people can misunderstand” such language when “our typical terminology is the direct opposite meaning of the medical terminology,” said Dr. Holly Andersen, director of education and outreach at the Ronald O. Perelman Heart Institute at New York-Presbyterian Hospital/Weill Cornell Medical Center in New York City. Neither Andersen nor Mallya were involved in the new research.

“We as a profession have jargon oblivion,” Pitt said. “We forget that there was a time when we learned these words, and didn’t know them.”

Is it a hidden infection or witchcraft?

Dr. William Schaffner, an infectious disease expert at Vanderbilt University Medical Center in Nashville, Tennessee, is frequently called upon in the media for his ability to help translate complicated science in terms that anyone can understand. He said the new research is “very important.”

“It’s a message to medical professionals that they need to speak very clearly with their patients, rather than to them,” Schaffner said.

By far, the most misunderstood medical term in the study was the word “occult,” a word that conjures up an idea of witchcraft in most people.

“People thought it meant demonic or that we thought you were possessed,” Pitt said. In medicine, “occult” simply means that a problem was hidden, or not immediately apparent to health care providers.

‘We’re gonna put you to sleep’

Pitt, a pediatrician, takes the lessons in effective communication to heart when treating children.

“A phrase that could be heard very differently by a kid would be ‘we’re gonna put you to sleep’ before a procedure,” Pitt said. “Think about ways that they may have heard that before. It probably means their dog was killed.”

Patients should feel empowered to ask doctors, nurses and any other health care personnel to explain themselves clearly, even if it feels uncomfortable, Schaffner said.

“Don’t hesitate,” he said. “If somebody is using medical jargon, a phrase that you don’t understand, feel free to say, ‘Excuse me, I don’t understand what you’re trying to say. Could you be a little more clear about that?'”

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Health insurance terms to learn as open enrollment begins

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It’s open enrollment season, the time each year when millions of American workers and retirees must choose a health plan, whether new or existing.

But picking health insurance can be a dizzying venture. Health plans have many moving parts — which may not come into focus at first glance. And each has financial implications for buyers.

“It is confusing, and people have no idea how much they could potentially have to pay,” said Carolyn McClanahan, a certified financial planner and founder of Life Planning Partners, based in Jacksonville, Florida. She is also a medical doctor.

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Making a mistake can be costly; consumers are generally locked into their health insurance for a year, with limited exception.

Here’s a guide to the major cost components of health insurance and how they may impact your bill.

1. Premiums

The premium is the sum you pay an insurer each month to participate in the health plan.

It’s perhaps the most transparent and easy-to-understand cost component of a health plan — the equivalent of a sticker price.

The average premium for an individual is $7,911 a year — or $659 a month — in 2022, according to a report on employer coverage from the Kaiser Family Foundation, a nonprofit. It’s $22,463 a year — $1,872 a month — for family coverage.

However, employers often pay a share of these premiums for their workers, greatly reducing the cost. The average worker pays a total $1,327 per year — or, $111 a month — for individual coverage and $6,106 — $509 a month — for family coverage in 2022, after factoring in employers’ share.

Your monthly payment may be higher or lower depending on the type of plan you choose, the size of your employer, your geography and other factors, according to KFF.

Health insurance terms to learn as open enrollment begins

Low premiums don’t necessarily translate to good value. You may be on the hook for a big bill later if you see a doctor or pay for a procedure, depending on the plan.

“When you’re shopping for health insurance, people naturally shop like they do for most products — by the price,” said Karen Pollitz, co-director of KFF’s program on patient and consumer protections.

“If you’re shopping for tennis shoes or rice, you know what you’re getting” for the price, she said. “But people really should not just price shop, because health insurance is not a commodity.

“The plans can be quite different” from each other, she added.

2. Co-pay

Many workers also owe a copayment — a flat-dollar fee — when they visit a doctor. A “co-pay” is a form of cost-sharing with health insurers.

The average patient pays $27 for each visit to a primary-care doctor and $44 to visit a specialty care physician, according to KFF.

3. Co-insurance

Patients may owe additional cost-sharing like co-insurance, a percentage of health costs that the consumer shares with the insurer. This generally kicks in after you’ve paid your annual deductible (a concept explained more fully below).

The average co-insurance rate is 19{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} for primary-care and 20{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} for specialty-care services, according to KFF data. The insurer would pay the other 81{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} and 80{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f}, respectively.

As an example: If a specialty service costs $1,000, the average patient would pay 20{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} — or $200 — and the insurer would pay the remainder.

Co-pays and co-insurance may vary by service, with separate classifications for office visits, hospitalizations or prescription drugs, according to KFF. Rates and coverage may also differ for in-network and out-of-network providers.

4. Deductible

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Deductibles are another common form of cost-sharing.

This is the annual sum a consumer must pay out of pocket before the health insurer starts to pay for services.

Eighty-eight percent of workers covered by a health plan have a deductible in 2022, according to KFF. The average person with single coverage has a $1,763 deductible.

The deductible meshes with other forms of cost-sharing.

Here’s an example based on a $1,000 hospital charge. A patient with a $500 deductible pays the first $500 out of pocket. This patient also has 20{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} co-insurance, amounting to $100 (or, 20{bf0515afdcaddba073662ceb89fbb62b6b1bf123143c0e06b788e1946e8c353f} of the remaining $500 tab). This person would pay a total $600 out of pocket for this hospital visit.

When you’re shopping for health insurance, people naturally shop like they do for most products — by the price.

Karen Pollitz

co-director of the program on patient and consumer protections at the Kaiser Family Foundation

Health plans may have more than one deductible — perhaps one for general medical care and another for pharmacy benefits, for example, Pollitz said.

Family plans may also assess deductibles in two ways: by combining the aggregate annual out-of-pocket costs of all family members, and/or by subjecting each family member to a separate annual deductible before the plan covers costs for that member.

The average deductible can vary widely by plan type: $1,322 in a preferred provider organization (PPO) plan; $1,451 in a health maintenance organization (HMO) plan; $1,907 in a point of service (POS) plan; and $2,539 in a high-deductible health plan, according to KFF data on single coverage. (Details of plan types are in more detail below.)

5. Out-of-pocket maximum

6. Network

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Health insurers treat services and costs differently based on their “network.”

“In-network” refers to doctors and other health providers that are part of an insurer’s preferred network. Insurers sign contracts and negotiate prices with these in-network providers. This isn’t the case for “out-of-network” providers.

Here’s why that matters: Deductibles and out-of-pocket maximums are much higher when consumers seek care outside their insurer’s network — generally amounting to about double the in-network amount, McClanahan said.

There’s sometimes no cap at all on annual costs for out-of-network care.

“Health insurance really is all about the network,” Pollitz said.

“Your financial liability for going out of network can be really quite dramatic,” she added. “It can expose you to some serious medical bills.”

Some categories of plans disallow coverage for out-of-network services, with limited exception.

For example, HMO plans are among the cheapest types of insurance, according to Aetna. Among the tradeoffs: The plans require consumers to pick in-network doctors and require referrals from a primary care physician before seeing a specialist.

Similarly, EPO plans also require in-network services for insurance coverage, but generally come with more choice than HMOs.

POS plans require referrals for a specialist visit but allow for some out-of-network coverage. PPO plans generally carry higher premiums but have more flexibility, allowing for out-of-network and specialist visits without a referral.  

“Cheaper plans have skinnier networks,” McClanahan said. “If you don’t like the doctors, you may not get a good choice and have to go out of network.”

There’s crossover between high-deductible health plans and other plan types; the former generally carry deductibles of more than $1,000 and $2,000, respectively, for single and family coverage and are paired with a health savings account, a tax-advantaged way for consumers to save for future medical costs.

How to bundle it all together

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Cheaper plans have skinnier networks. If you don’t like the doctors, you may not get a good choice and have to go out of network.

Carolyn McClanahan

certified financial planner and founder of Life Planning Partners

“Understand the first dollars and the potential last dollars when picking your insurance,” McClanahan said, referring to upfront premiums and back-end cost-sharing.

Every health plan has a “summary of benefits and coverage,” which presents key cost-sharing information and plan details uniformly across all health insurance, Pollitz said.

“I’d urge people to spend a little time with the SBC,” she said. “Don’t wait until an hour before the deadline to take a look. The stakes are high.”

Further, if you’re currently using a doctor or network of providers you like, ensure those providers are covered under your new insurance plan if you intend to switch, McClanahan said. You can consult an insurer’s in-network online directory or call your doctor or provider to ask if they accept your new insurance.

The same rationale goes for prescription drugs, Sun said: Would the cost of your current prescriptions change under a new health plan?